Today
Alex visited his Ped Op at Duke. It was a standard visit to
check how he is doing.
We
were unable to get a reading of his eye pressures because Alex did not like the
instrument in his eyes and wanted to touch it or turn his head away.
Basically, he is a squirmy toddler and has figured out the whole doctor
thing. It is challenging because if they cry, the pressures
rise. Not that she even got a reading. He just didn't want to
cooperate. His pressures were good and low in September so we are going
to try again in May to get a reading. If we cannot get a reading at
that appointment, we will discuss an exam when he is sedated.
To
check his vision, drops were applied to dilate his eyes. The doctor
held up different glass lenses to check his
vision. Alex is extremely far sighted which she had mentioned
at previous visits without the vision test. Today the doctor
prescribed glasses. We are going to see if he is interested in
wearing them to improve how he sees things close up. We are hoping he
notices the difference and wants to wear them. This process was difficult
because he did not want to let the doctor examine him (that whole toddler
thing) so we had to hold him snugly and hold his eyes open so she could
look. Poor little guy.......lots of crying and tears......very sad for
everyone in the room.
I
was a little concerned with the length of time per week Alex wears a patch on
his right eye. But the doctor said he has improved and we will continue
the patch therapy for 5 hours per week.
Wednesday
is Art Cart day at the Ped Op office so Alex created art with the very
nice lady who leads it. He made dot marker art and played with pom poms
in a plastic egg taking them out and putting them back in over and over.
It is nice they try to provide activities/toys/books/etc. for the children since
the appointments last a minimum of two hours.
Next
visit is in May so we will keep you updated. I need to price glasses and I will make sure to post about that process. Here is a
picture of our little cutie before we left for the appointment.
Alex - 17 months old |
Hello! I am so happy that I found this blog:)
ReplyDeleteI am the mother of the four girls from Finland. My seven year old girl has aniridia.
it is perfect in both eyes.I do not know how many people in Finland suffer from aniridia. I have never met a anyone who has aniridia. it`s nice to read your family and your boy. can you put me in an email (mirvasdream@gmail.com)idont write very well wnglish, but maybe we understanding of each other :)