Wednesday, November 16, 2011

Visit to Duke

Follow Up Visit at Duke
Yesterday Alex had an appointment at Duke Eye Center.  His pressures look good - no Glaucoma.  And no cataracts.  Our next appointment is in three months, which is February.  We plan on discussing the renal ultrasounds with our pediatrician.  Here is a picture of little Alex while we were waiting for his appointment.  He is so much bigger than at the last visit.  We had to remove the newborn insert from the car seat since he is well over 11 pounds. 

Ped Op Visit at Duke 11/15/2011


Alex at 3 Months
At his two month well baby visit Alex was 11 pounds 14 ounces and 23.5 inches long and that was a few weeks ago.  Alex is tracking objects with his eyes which is great.  I definitely think he sees our faces.  His favorite toy is a red, white, and black bug with crinkle wings.  We attach this to the mobile on his swing and you can see his eyes following it.  We have a light up toy and some others to work on stimulating his vision.  In terms of other milestones for an almost three month old, he is right on track.  Smiling, laughing, cooing, gripping objects - everything listed in the baby books.  And he is so strong!  Right after he was born he held his head up.  Now he is trying to roll over.  We have to fasten the safety belt on his swing because he throws his right arm towards his left side and twists his body.  He does this on the changing mat, also.  We have noticed a lot of sensitivity with indoor and outdoor light which is expected since there is little iris to regulate light.  He does have the tiniest rings of blue around his pupils.  Blue eyes, just like his momma.  We are making an effort to position him with his back to windows and to limit exposure to the sun until his glasses and hat fit.  We keep trying them on but they are still a little too big. 

Cutest little mouse 10/30/2011        




Baptism 11/5/2011


Aniridia Friends
I think the most comforting thing has been the support from other families and people with Aniridia.  If you or your family member has Aniridia, the United Families of Aniridia group on Facebook is wonderful.  The moderators are very supportive and answer questions.  I have been able to connect with other parents and it has been so helpful.  It's nice to get their recommendations for sunglasses and things like that, but it's most comforting to see older kids with Anirida and how they are thriving.  Here are links to a couple of blogs you might be interested in checking out:

Following gorgeous little Avery as she grows
Tiffany and her journey to become a nurse

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