First Duke Pediatric Ophthalmologist Visit

Yesterday Alex had his first visit with the Pediatric Ophthalmologist (Ped Op) at Duke.  We really liked the doctor and are looking forward to her treating Alex.  Quite a bit of waiting but it was totally worth it.  Next time I will definitely schedule a morning appointment if possible. 

A big thank you to my parents who were lifesavers and picked up Julia from day care when we realized we would not get to her school before closing. 

So, here is what we found out:

·         Foveal hypoplasia which was pretty much expected.

·         No glaucoma at this time

·         No cataracts at this time

·         No glasses at this time, but with foveal hypoplasia he will have glasses in the future.

·         Sensitivity to light.  Again, this was expected.

Where do we go from here?

·         Monitor for glaucoma or cataracts

·         Formal vision training

·         Wait for results of genetic testing to see if he has WAGR syndrome

·         Frequency of visits will depend a lot on how he progresses in the first 6 months of life or if other conditions arise.  At 18 months he will undergo an exam while sedated to look at the drainage mechanism to monitor for glaucoma. 

I am so glad I brought a note pad and pen with me to take notes and highly recommend doing this.  It is also a great place to write down any questions you have for the doctor.  I plan on making a folder with all his results and reports to keep track of everything in one place. 

I am excited to start the vision training.  I had already researched the Governor Morehead School  and read the Wee Play in the Dark book.  Be on the lookout for a post on vision training (hopefully) soon.

We really appreciate all the prayers and support for Alex.  Thank you!